Usually, a disease will do more damage to one’s life beyond just its symptoms. It may come with really negative social and financial implications – making it hard for the patient to interact with others and draining bank accounts by way of medical bills. Some can be mild while others can be severe, and others will come and leave within short periods while some will stick around for a lifetime. But, whatever the nature and effect of one’s disease, there is a whole new dimension added if the doctors can’t diagnose the illness.
Undetected, With a Touch of Unapparency
The obvious implication of a disease that goes undiagnosed is that it won’t be treated and such attempts would be like shooting a gun into the darkness, hoping to hit a target you really can’t see. There is a sense of frustration that comes with this, and more hopelessness creeps in every time the test results come out and the doctor tells you they can’t find anything.
But, there is even more frustration and hopelessness with a disease that goes undetected and comes with unapparent symptoms, symptoms that only you can feel and understand. There is an added sense of loneliness to the whole ordeal. Sometimes, one might even be able to go about their daily business but in both physical and psychological pain. The people can see you talking and laughing but really can’t understand your complaints. The end result is the verdict of ‘it’s just in your mind’
It’s in Your Body, Just not in Their Minds
It is in your body- you can feel it, and you know it’s getting worse and worse. You can see yourself slowly failing to do more and more of the things you could. But in all these things, only you can see what is going on. Those that say it’s in your mind are wrong, and that’s because their minds just can’t get it. It’s out of their perception. This gets worse when the people you depend on, the doctors, are the ones to say it’s just in your mind. It’s like hitting a huge brick wall after a long walk in the desert sun. What next to do?
How to Deal With Sceptics of Your Undiagnosed Illness
The best you can do is understand that they just can’t see what is wrong. While some might be malicious at this, most, especially family and friends, will say it’s just your imagination out of love and in attempts to comfort you. They don’t want to see you suffer, and not knowing what else to do, they resort to those words. This can be hurtful on the part of the patient and it really doesn’t help. Ignoring and understanding the sceptics is the only way to go. You will do well to only mind those that believe you.
What of Doctors That don’t Believe you?
The doctors only depend on tests to come up with a professional conclusion. It is not right for them to work on the basis of speculation. Sometimes, 50 percent of the problem may lie in the difficulty of the disease to be diagnosed, and the other 50 in the non-thoroughness of the tests done by the specialists. Some diseases need more than mere blood tests and it is on your doctor to judge what test might likely unearth the illness depending on the symptoms you are reporting.Your part in all this is to try to be as thorough as possible in telling your doctor your symptoms. Make sure you report everything including those things you think are unrelated to the core issue.
If you think the doctor is not doing enough, as is the case sometimes, then move to a new one.
How to Handle a Patient With an Undiagnosed Illness
Next to the cure of a disease is the sense of having a shared problem, knowing you are not alone.
When you tell someone complaining about a particular disease ‘It’s just in your mind’, you automatically shut off any attempts to sort out the problem, at least that’s what it appears like in the mind of the patient. To you, there is no problem and, therefore, no need for a solution.
You have to show such people you believe them and that makes such a huge difference out of all the sceptics around.
Coping With Undetected Diseases
Usually, undiagnosed diseases come with impalpable symptoms including depression, anxiety, fatigue, joint pains and headaches. At this point, the only action you can take will aim at alleviating individual complaints. Even the unbelieving doctor will be in on this and will know what best to give you. You are at this moment your best physician so it’s on you to take note of all things surrounding your condition. You have to take note of what triggers the symptoms and how they leave and see how you can best position yourself.